Welcome to migraine discussions, my name is Michael Fernandez, and I’ve created this blog due to a lack of information on the topic of chronic migraines. I’ve been experiencing migraines since my early high school years, which means I’ve been suffering from migraines for nearly 9 years now. In that time my diagnosis has changed a few times since my health went downhill alternating from Status Migrainosus after a vicious bout of migraines and vomiting I attributed to the flu, to the current diagnosis which is Chronic Migraine with an underlying illness called Churg-Strauss Syndrome, I feel strongly that neurologists can make leaps and bounds in treating migraines much sooner if those of us suffering lay our lives out to all these researchers like an open book. In fact patient’s writing about their experiences should be far more common, a majority of the books I own on the subject are written by neurologists, psychologists, or snake oil salesmen(energy healing).
I don’t confine my writing to only my Chronic Migraines because the Stage 2 Churg-Strauss Syndrome is a type of vasculitis which can severely exacerbate migraines. This isn’t merely my opinion, but that of two world class specialists, both a headache specialist and rheumatologist from Mount Sinai in New York City. It’s rare to have such a clear target and diagnosis so quickly but my massive eosinophil count and positive ANCA tests led them to make that conclusion for certain without doing an open lung biopsy. I’m now in chemotherapy for remission and am soon to have my second treatment on Rituxan which my body hasn’t reacted all that well to. I just hope I don’t go on Cytoxan, that stuff will just plain kill me at this frail point in my life.
I just published my first eBook yesterday written slowly as I learned to write my poetry on this blog! It’s my first 30 true poems on chronic pain concerning Churg-Strauss Syndrome, this community, and of course Migraines! Here’s the link to my Amazon author page: http://www.amazon.com/Michael-Fernandez/e/B00H9UVCIS/ref=ntt_athr_dp_pel_1
*Last updated 12/13/13*